My Insomniac Life

Deep into that darkness peering, long I stood there, wondering, fearing, doubting,

dreaming dreams no mortal ever dared to dream before.

I became insane, with long intervals of horrible sanity.

We loved with a love that was more than love.

Quoth the raven, “Nevermore!”

Those who dream by day are cognizant of many things which escape those who dream  

only by night.

All that we see or seem is but a dream within a dream.

The boundaries which divide Life from Death are at best shadowy and vague. Who shall

say where the one ends, and where the other begins?

Ah, distinctly I remember it was in the bleak December; And each separate dying ember

wrought its ghost upon the floor.

 All religion, my friend, is simply evolved out of fraud, fear, greed, imagination, and

poetry.

 And my soul from out that shadow that lies floating on the floor Shall be lifted—

nevermore!

– Edgar Allan Poe

My Insomniac Life

* This is a long chapter but an important one as it is a major part of my own mental health– sleep is always an issue in my life.

This is a long chapter, and I apologize for it being so. This might become a series as I start to work on my insomnia again.

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Insomnia has been a part of my life for as long as I can remember. I like to joke to people that “it’s in my blood to not sleep.” But, it is a severe issue in my life. You ask any professional they will tell you that good sleep is key to your mental health.

Unlike most of the things wrong with my life, like living with Bipolar disorder or my social anxiety, I have never felt in control of being an insomniac. I have been through several sleep studies in my life, but they never amount to actually helping me. I have worked on my sleep hygiene but, to no avail, it doesn’t really help me get to sleep. My biggest problem is the actual getting to sleep.

I can remember growing up eight or nine and not being able to sleep. Over the years it has become impossible to get to sleep without medication. I can’t remember the last time I could lay down and go to sleep without medication. I sometimes joke about this because I feel insecure about my rest. If I really think about it, I spend more time at night trying to shut my brain off enough to get sleep, than actually getting to sleep. I have tried every sleeping medication on the market, both prescription and not, and at best they’re a temporary fix.

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What has gotten me through the last few years is that I take the antipsychotic Seroquel to help with my Bipolar disorder and it is one medicine that can sleep. It’s the one medication that has been consistent in my life because it does a great job at shutting my brain down (although the side effects of having trouble getting out of bed as well as being in a constant haze have always been the worst.) Over the years my dosage of Seroquel has changed.

At one point in my life, I took that max dosage of Seroquel allowed for a patient at 600mg every night. This was early in my diagnoses in 2007, and it went like that for years. Most days that dosage got me to sleep, but the problem was that oversleeping became an issue. When I would oversleep, it would make it harder to sleep the next day. I grew wildly inconsistent with my sleep, and sometimes I would go days without sleep even with the high dose of Seroquel. My days were spent mostly in a haze, at least a few hours after waking. The drug is potent, and I felt that sleep would be impossible without it.

Around 2012 when I was starting to get back to normal, and going back to school was on the horizon, my doctor and I came up with a plan to find a workable dosage where I could still function. Eventually, we settled on a 300mg dose. It worked for three or four years and while I even got less than five hours of sleep, but at least it was something.

I should have realized last year that my sleep was starting to become a major issue again. There would be spurts of time over the previous year where sleep was impossible at 300mg. My doctor at the time made a choice to give me options. I would get 100mg tablets and continue to take the 300mg dose with the opportunity to go up to 600mg if needed.

It was slow, but the dosage over the last year has steadily increased. It started with 400mg to get me to sleep, and I would raise it to 500mg if needed. Sometimes it took that much more, but 400mg was enough.

Then this weekend happened. If I had known on Friday that my sleep would take a wrong turn, I might have worked harder to get back down to my 300mg dosage in the weeks prior. By I digress.

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It started on Saturday. I knew I had to wake up around 5am over the next couple days, so I figured why not go to sleep at a decent time? It usually takes me two hours from the time I take my Seroquel, to the time my mind shuts down so I can sleep. I took my usual 400mg and went to bed— early. I honestly tried to sleep. I was in total darkness, and I just laid there not feeling even a little tired.

I figured it was a night for another single dose, so I did that, and still sleep escaped me. Hours had started to pass, and I began to panic that I wouldn’t get enough sleep, it turns out that was the least of my worries. Around 2 am, I decided I had to get some sleep before waking up and did the unthinkable. For the first time in five years, I took a max dosage.

This story doesn’t get better. I didn’t sleep that night/morning and still had to get up to be normal. I had to do the things that were planned. I was exhausted. I felt heavy. The worst part is, it was about to get worse. By the time the evening rolled around, I could barely keep myself upright, and I figured why not try and sleep? My anxiety was at a very high level, and it was already in my head things were only going to get worse.

I tried to go long into the night before taking my medication, but I finally had enough around 6pm. I received my regular dose, and I was barely aware of my surroundings. I laid down with the hope of falling asleep, and for some reason that woke me up. I lay there in my bed once again my thoughts racing faster than the day before. It had been close to 36 hours since I last slept. After an hour, I upped my dosage to 500mg. After two more hours of lying there, I took one more dose. After 40 hours, sleep finally consumed me.

This is where I find myself today. I am depressed about this because of it such a significant deal and its finals this week. I am worried that tonight will be another step in the wrong direction with my sleep. I have no choice but to really work on my CBT today so that there is a hope to get my mind right. I have to get my mind right.

Insomnia like depression never comes when life is good, and nothing can bring you down. It happens when your mental health has taken a beating you are failing to recognize the symptoms and even the triggers. When I am overworked, I tend to forgo the things that help me get by. CBT, meditation, or using my heat lamp in the mornings. When my routine starts to change like waking up later and later each day.

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Your body always gives you signs. It does that to protect itself from total collapse. Considering what I have put my body through over the last ten years, my body is well versed in what is wrong. I implore you in this mental illness life to take a moment each day and assess where you at with your health. How many hours did you sleep? There is often a correlation between sleeping less and less each night and when my social anxiety starts to spiral.

Sometimes in this life, all three hit me at once. My social anxiety, depression, and anxiety. This is what I call my worst-case scenario because it takes its toll. For me, it starts with sleep. The less I get, the more issues I have in my day. I still don’t have it exactly right. I am weary that Insomnia will always be a part of my life.

Many of the conversations that I have with my therapist when my social anxiety is spiraling is how your sleep is? Insomnia can be a dangerous thing. I remember before all my sleeping medications and Seroquel that I would go days without real sleep. I once almost made it to six days before exhaustion caught up.

In those times my thoughts would race for days. I couldn’t tell you how I functioned and in a way, I didn’t function at all. I would do what I could to occupy my time. Playing video games often helped me. Watching DVD’s for hours on end (this was before the whole Netflix thing.) I would lay there in the darkness for hours until the morning light reached through my window to tell me it was another day. The worse my sleep got, the worse my other things like depression got.

In my chapters about my suicides, you find that insomnia is tied into each one. My sleep was so bad at one point that I took a sleeping aid on top of the Seroquel. The thing is, medication only works for so long. In about seven years I went through every sleep aid my psychiatrist could give me. Eventually, they stopped helping.

My battle with insomnia has been a really long one, and it seems one that I will bring with me for the rest of my life. One day I will find a better way of managing those two-three hours it takes me each night to get to sleep. My point is rest is the most essential part of the mental health recovery process. If you struggle with it and haven’t sought help, there are many resources available to you.

Always Keep Fighting (AKF)

James

Photo Credit:
Quin Stevenson

kaluci

Annie Spratt

Rafael Barquero

JD Mason

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27 Replies to “My Insomniac Life”

  1. I am very familiar with 600mg of seroquel, it was my bed partner for many years. Fortunately I no longer have the horrific night terrors I had shortly after I escaped domestic violence, and I no longer need to be completely knocked out. I still have trouble falling asleep, turning off my brain is so hard, but nothing as severe as constant insomnia. I wish you well with your finals, and admire you for continuing your education despite your setbacks.

    Liked by 1 person

    1. Thank you. I actually wrote this a while back. I am starting my Masters program in October. I still take about 400 most nights. I’ve gotten to a point that I can’t live without Seroquel. It is not a good thing.

      Liked by 2 people

      1. But if it’s helping you, then you need it. My doctor also when swiping meds recommended I don’t stop cold turkey, because your body could go into a withdrawal. So, I’d say, continue to take them, and consult with your doctor when the time comes to start weaning off them.

        Liked by 1 person

  2. I have insomnia off and on for the same reason – I can’t shut my brain down. I can’t even imagine taking the max dosage of Seroquel. 50mg knocks me on my ass and I’m a zombie the next day. So I stick with Klonopin as needed. More power to you, dude.

    Liked by 2 people

      1. I hope you find something to make it better!

        Like

  3. Hay James,
    When I was on meds for my insomnia it started out the same way low dose became a higher dose real fast as my body adapted to it then on to a new med and the same thing again and when I didn’t have any meds there was no sleeping tell I got more, that’s why I got off the meds I was addicted to something that wasn’t really working and I couldn’t sleep at all with out them. Now I just deal with it the best I can, 4′ hrs of sleep I can function on if I get more that’s great.

    ❤️✌️
    BY FOR NOW

    Liked by 1 person

      1. Pysical exzotion helps with that how ever you can get it and meditation as well or laying on the couch watching TV tell you tall asleep.

        ❤️✌️
        BY FOR NOW

        Liked by 1 person

  4. Insomnia is a terrible terrible disorder. I have had it all my life as well. You know anything I have googled online and tried has never worked. Its a shame there is no cure really. My heart goes out to you because you are not alone!!

    Liked by 1 person

    1. I have tried about a million things and none of it truly works. I agree with you it is very terrible. I am glad I am not alone. It’s hard to connect to people who understand so thank you.

      Liked by 1 person

      1. Yeah I have written about mine several times. Its stopping me from living. I can barely function let alone leave my place to get some very much needed stuff done….

        Liked by 1 person

      2. I know what you mean. I barely function most days. I can only sleep with a max dosage of Seroquel. It sucks because it makes me very lethargic.

        Liked by 1 person

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